THE I FIGHT PID FUND AT AUBMC IS A VOLUNTEER INITIATIVE THAT BENEFITS CHILDREN DIAGNOSED WITH PRIMARY IMMUNE DEFICIENCY...

LET'S FIGHT

PID PROGRAM AT AUBMC

PID Program At AUBMC :
The program is a clinical service specialized in the care of patients with suspected or established immunodeficiency with dedicated outpatient and inpatient components. Difficult cases are discussed in regular meetings and members of the Immunology Division at Children's Hospital in Boston are consulted when needed in the diagnosis and management of these cases. Our PID program is part of a collaborative network joining five hospitals in four Middle Eastern countries (Turkey, UAE, Kuwait, and Lebanon) with Children's Hospital in Boston and Harvard Medical School. Our center serves as referral center for our partners in this network when cases with suspected defects in apoptosis, T cell regulation, or neutrophil function are encountered. The main aim of this network is to offer a state-of-the-art approach to the patient with suspected immunodeficiency by providing appropriate diagnostic tests and optimal medical care. It also allows identifying previously unknown immunodeficiencies undoubtedly present in the highly consanguineous Middle-Eastern population.

Our services include:
1. Consultation with experts in Primary Immunodeficiency Disorders (Drs. Ghassan Dbaibo and Rima Hanna-Wakim). Consultation with stem cell (bone marrow) transplant (Dr. Miguel Abboud) when needed.

2. Basic laboratory workup for immunodeficiency available at AUBMC including but not limited to (Ig quantitation, with IgG subclasses, complement levels, specific antibody titers, FACS analysis of various immune cell populations, dihydrorhodamine testing, and HLA typing).

3. Additional diagnostic tests are done on a research basis and are crucial for the diagnosis of many cases. These tests are done at the Center for Infectious Diseases Research and other functional and genetic tests are sent to Children’s Hospital in Boston. The research tests, including those done at Harvard, are done at no cost to the family.

4. Once a diagnosis is identified, a treatment options plan is formulated and discussed with the family.

5. Some cases will require life-long treatment with intravenous immunoglobulin (IVIG). Other cases may require stem cell (bone marrow) transplantation. Both of these services, as well as other routine treatments are available at our center.

6. Genetic counseling to inform families about risks for other children or family members.


The iFight PID fund at AUBMC will assist families that qualify for financial help, based on evaluation by our Social Services Department, to pay for laboratory tests and treatment received at AUBMC, including the cost of stem cell transplantation.

Resources

PID program at AUBMC: https://goo.gl/pf58cQ

Ghassan Dbaibo medical research link: https://goo.gl/AMj2Cv

Ghassan Dbaibo Directory link: https://goo.gl/cN5TGR

Rima Hanna-Wakim Directory link: https://goo.gl/Q590r8

Rima Hanna-Wakim Directory link: https://goo.gl/VinOJQ